June 24, 2003

Down Days

The last few days have been down ones after the good week last week. Susan continues to battle nausea and increasing pain. These symptoms might be due to the taxotere treatment, or they could be the disease itself. It's too early to tell. Although the TPN treatments have been going well--except for one I botched Sunday night--her weight continues to decline. We don't know if it's a real weight loss (down to 91.0 this morning) or the digital scales we are using that we inherited from my mom, who got them as part of her treatment for congestive heart failure. (For my mom, the doctors were concerned about weight gain due to fluid retention, whereas for Susan it's weight loss due to the disease that's the issue.)

Susan says that she is feeling spacey today. Nonetheless, we had a good visit from the granddaughters and their mom this morning. Also, Jamie is staying with us while her mother is out of town. This afternoon, Susan is pretty much conked out on the couch recovering from the morning excitement. Tomorrow the home health nurse comes to change out her port access and take blood. Then on Thursday we visit with the gastroenterologist regarding how the TPN is going. Friday is the big day with visits to the urologist to check the stints, and then have chemo at 1 PM. Your faithful prayers are appreciated for all of the above.

PS: to those who have called us and left messages, I apologize for not always being able to pick up to talk to you in person. Particularly around dinner time I have to do some fairly delicate operations associated with TPN and I can't answer the phone. Please know that we really appreciate your taking the time to call, send cards or email, and I hope eventually to get back to each of you in person. Thanks!

Posted by John Dishman at June 24, 2003 03:17 PM